Original Research|Articles in Press, 104383

Prevalence of Diabetes Distress Among Adolescents With Type 1 Diabetes Mellitus


      • Adolescents with type 1 diabetes mellitus (T1DM) reported moderate to significant diabetes distress.
      • Adolescents with T1DM have increased emotional burden related to diabetes management.
      • Adolescents with T1DM are at increased risk for long-term complications and worsening health outcomes.
      • Adolescent females with T1DM reported increased difficulty with interpersonal relationships.
      • An online diabetes distress scale may be an effective tool for identifying diabetes distress among adolescents with T1DM.


      Adolescents with type 1 diabetes mellitus (T1DM) are at increased risk for diabetes distress. This cross-sectional study used the Diabetes Distress Scale (DDS) to determine diabetes distress among adolescents with T1DM in a pediatric endocrinology clinic. Sixty-one percent of respondents reported moderate to significant diabetes distress levels, with overall diabetes distress of M = 2.409 (SD = 0.853). Emotional burden subcategory had the highest distress (M = 3.214, SD = 1.449). Minimal distress levels were reported in the physician burden subcategory (M = 1.133, SD = 0.276). Results support the need for routine diabetes distress screening.


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        • Iturralde E.
        • Weissberg-Benchell J.
        • Hood K.K.
        Avoidant coping and diabetes-related distress: pathways to adolescents’ type 1 diabetes outcomes.
        Health Psychol. 2017; 36: 236-244
        • Kreider K.E.
        Diabetes distress or major depressive disorder? A practical approach to diagnosing and treating psychological comorbidities of diabetes.
        Diabetes Ther. 2017; 8: 1-7
        • Fisher L.
        • Polonsky W.H.
        • Hessler D.
        Addressing diabetes distress in clinical care: a practical guide.
        Diabet Med. 2019; 36: 803-812
        • Pallayova M.
        • Taheri S.
        Targeting diabetes distress: the missing piece of the successful type 1 diabetes management puzzle.
        Diabetes Spectr. 2014; 27: 143-149
        • Hagger V.
        • Hendrieckx C.
        • Sturt J.
        • Skinner T.C.
        • Speight J.
        Diabetes distress among adolescents with type 1 diabetes: a systematic review.
        Curr Diabetes Rep. 2016; 16: 1-14
        • Polonsky W.H.
        • Fisher L.
        • Earles J.
        Assessing psychosocial distress in diabetes: development of the Diabetes Distress Scale.
        Diabetes Care. 2005; 28: 626-631
        • Diabetes Association American
        Children and adolescents: standards in medical care in diabetes.
        Diabetes Care. 2022; 45: s208-s231
        • Harris P.A.
        • Taylor R.
        • Thielke R.
        • Payne J.
        • Gonzalez N.
        • Conde G.J.
        Research Electronic Data Capture (REDCap)—a metadata-driven methodology and workflow process for providing translational research informatics support.
        J Biomed Inform. 2009; 42: 377-381
        • Harris P.A.
        • Taylor R.
        • Minor B.L.
        • et al.
        REDCap Consortium. The REDCap consortium: building an international community of software partners.
        J Biomed Inform. 2019; 95103208
        • Holt R.G.
        • de Groot M.
        • Golden S.H.
        Diabetes and depression.
        Curr Diabetes Rep. 2014; 14: 1-17
        • Hagger V.
        • Hendrieckx C.
        • Cameron F.
        • Pouwer F.
        • Skinner T.C.
        • Speight J.
        Diabetes distress is more strongly associated with HbA1C than depressive symptoms in adolescents with type 1 diabetes: results from Diabetes MILES Youth Australia.
        Pediatr Diabetes. 2017; 19: 840-847
        • Lasaite L.
        • Dobrovolskiene R.
        • Danyte E.
        • et al.
        Diabetes distress in males and females with type 1 diabetes in adolescence and early adulthood.
        J Diabetes Complic. 2016; 30: 1500-1505
        • Forsander G.
        • Bogeland M.
        • Haas J.
        • Samuelsson U.
        Adolescent life with diabetes—gender matters for level of distress. Experiences from the national TODS study.
        Pediatr Diabetes. 2016; 18: 651-659
        • Morrissey E.C.
        • Casey B.
        • Dinneen S.F.
        • Lowry M.
        • Byrne M.
        Diabetes distress in adolescents and young adults living with type 1 diabetes.
        Can J Diabetes. 2020; 44: P537-P540
        • Diabetes Distress Assessment and Resource Center
        Diabetes distress scale (DDS).


      Vanessa L. Hedge, DNP, CPNP-AC, CNEn, is an assistant professor at Radford University School of Nursing, Radford, VA, and can be contacted at [email protected]


      Wendy R. Downey, DNP, MSEd, RN, CNE, is an associate professor and the Interim Dean at Radford University School of Nursing, Radford, VA.


      Kimberly F. Carter, PhD, RN, at the time of this work was senior director of nursing research, EBP, and Excellence (now retired).


      Hunter Sharp is a biostatistician, Health Analytics Research Team, Carilion Clinic, Roanoke, VA.